My husband called me at work the day after the MRI. I was in meetings all morning at work. After I got done, I called him back. He answered, "The doctor called."
We had the MRI done on October 8th. We were lucky to go to Cook Children's and be the first appointment of the day. I woke up super early that morning to give Addyson the last bottle she could have at 1:00am since she would be sedated and intubated for the procedure. I tossed and turned until it was time to get up at 5:00am. We checked into the hospital at 6:00am. It was a surreal experience. You always hope that you will never have to go to a children's hospital. At least not for anything more than a broken bone or something of that sort. It's definitely the happiest sad place I've ever been to. We were called back into a room to prepare for the procedure. Of course Addyson is screaming because she is hungry. After about 30 minutes she tired out and fell asleep in my arms.
Again, God has continually worked this out in only the way that He could. I was very emotional and in desperate need of distraction. The nurse taking care of us actually ended up being the mom of a little boy in my son's class! It took my mind off things and made me laugh to realize we had both received the same note home the following week: "Your child was running around the room, wrestling, and climbing on tables. Please discourage this behavior at home." Yeah, Caden is 3. And he is ALL boy. It's safe to say I discourage a lot of things, but I do adore his adventurous personality. He's so much fun!
Finally at 7:30am they took her back. I was able to hold her little hand while they gave her the laughing gas to put her to sleep. I was comforted knowing she wouldn't feel anything--the IV being placed or having the tube put down her throat. My in-laws came to the hospital to wait with us, so we went to the cafeteria and got some breakfast while she was having her MRI. We were paged about an hour later letting us know everything was done.
The nurses had told us that our particular neurologist was typically very on top of things and that he would probably have the results the next day. I figured that he would call to set up an appointment for us to discuss the results, so I was very worried when I answered my husband's call and he said, "The doctor called." It's one of those things, you never want the actual doctor to call. That normally means bad news. So of course I was panicked. Then my husband began to explain that the doctor said that her MRI did not show any brain damage. The doctor simply said, "I was wrong." I just started sobbing. I could not honestly believe what he was telling me. I have prayed over my daughter every day, multiple times a day, asking for God's healing. Some might just say that it's a coincidental mistake. I find it very hard to believe that her neurologist, an expert in this, would take a look at her and definitively say she had brain damage if he wasn't sure. Even if he had a little bit of hesitancy, you'd think he'd order the MRI and say, "Let's wait and see." But that's not what happened here. I fully believe that God is the Ultimate Healer and He is to thank here. He should get all the glory for this miracle. Now I get to rock her and lift up prayers of thanksgiving every day.
Of course, this doesn't mean that Addyson doesn't have challenges. Obviously she still presents with hypertonia. The good news is that the MRI doesn't show any damage, which means that if there is any neurological damage there, it's so minimal the MRI couldn't detect it. This also means that she likely won't have any cognitive delays. We are still going to receive physical and occupational therapy through ECI. She is making leaps in bounds already in therapy! We will be following up with the nuerologist in December and possibly doing another MRI in the future.