Tuesday, July 15, 2014

Where Does Time Go?

Wow, it's been a whirlwind of activity since April.  Everyone is doing great in our home.  I work in the education field, so I get the summer's off which is priceless to me.  I adore the time I get to play stay-at-home-mom with my babies during the summer, as well as the other long holiday breaks during the year.  I've got the best of both worlds in my opinion.

Updates on Ms. Addyson.  She's doing SO WELL!  I am amazed at how we set a goal for her and then she just zooms right through it.  She's amazing.  Every time I think I can't do something, or feel like there is a pre-determined expectation, I just remind myself that I was told my sweet girl wasn't going to hit her milestones on time.  Don't judge a book by it's cover!

She started crawling around 10 months which is the same age my son was.  She's into absolutely everything.  Some days I want to pull my hair out, and other days I soak it all in, reminding myself how blessed we are. 

She's 13 months old today.   Wow, where does the time go?  I feel like it's only been in the last few months that I've been able to exhale this breath I've been holding for so long and enjoy her fully.  I've worried so much over her.  As of today, she cruises everywhere, walks with one hand assistance and has push toys she nearly runs with across the house.  She babbles a lot and can request "more" by making the "mmm" sound.  She says baba for her sippy cup.  She can also say Mama, Dada, Bubba, and something that sounds very close to Caden (her older brother's name).

We have had quite a few doctor appointments this month.  Drum roll, please.....

Opthamology--Background, she has anisocoira where one pupil will dilate differently from the other in different light.  Our appointment showed that everything looks good.  They can't explain why she tears up when she eats.  They did say she shows signs of near-sightedness and will likely need glasses in childhood.

Neurology-- Background, she was referred at 2 months old and was suspected to have Cerebral Palsy.  Are you ready for this?  DISMISSED!!!!!!!!!  Her tone looks really good, she's slightly hyper-reflexive, which myself and Caden are as well.  But everything looks great.

Pulmonology--Background, she was born with stridor, basically making her sound very raspy when she breaths.  As for this appointment, again, she is DISMISSED!!!!!  I also asked about the tearing up when she eats, but to no avail.  It remains a mystery.  We are just hoping she'll outgrow it soon.  It's getting progressively better.

Endocrinology--Background, she was referred due to short stature.  Testing revealed a genetic issue that we will be following up with.  For this appointment, the doctor recommended that she be switched to 2% milk instead of whole milk due to her weight/height ratio.  She's a chunky monkey!  Her predicted adult height is 5 feet tall.  We will go back in one year for a bone age x-ray, just to make sure there isn't a problem there.

So overall, everything is looking great.  She's a tiny little fireball!  Her personality is really starting to show itself more and more every day.  I need to get a picture of the pouty face she uses on her daddy.  It's absolutely priceless, and of course it just makes him melt.  I love it.  We will see the geneticist in August, but my instinct is that they won't pursue further testing.  I don't see any reason for it.  She's reaching milestones and thriving.  God is good. 

Some days I wonder why we had to go through all of this.  There are days I wish that our pediatrician wouldn't have referred us to neurology, which sent us down this winding road of specialists.  I mourn for the loss of simply enjoying her infancy.  I tried so hard not to worry and to relax and enjoy it, I really did.  But how do you not worry when no one seems to have answers but everyone is telling you she's not "normal."  So I finally exhale and I get to breathe her in--everything that makes her so special and unique.  I can't wait to tell her the story of how God made her and how strong she is.  Someone once told me "can't never could," meaning that if you say you can't do something, then you probably won't ever be able to do it.  But if you try, you just might succeed.  To everyone who said she couldn't or wouldn't, I say "can't never could" but try and she did.

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